In recent posts I have made a lot of references to the importance of ‘Speech and Language Therapy’ especially when Parkinson’s Disease is diagnosed. My last post on this subject explained the difficulties in accessing this much needed service, and how my dads therapy group had been cancelled.
The following link provides details of the importance of speech and language therapy for Parkinson’s patients. .
It’s been almost a year now since dad’s diagnosis and he has yet to complete a group therapy session. In the first one to one visit at home, he was left with an action plan, excercises for his breathing etc. . and he was following these excercises, but it’s difficult to motivate him into doing these every day, especially when nobody is following them up or assessing his progress.
I have been doing my best to help motivate my dad, but I am at a loss as to how much he needs to do every day. Additional issues come into this, such as dads memory loss, he says he has done some excercises, but unless I sit and watch him, I am not sure if he actually remembers following the instructions, or actually doing the excercises.
Therefore, I am left to follow the services up again and find out when the therapy group will start again. I am wondering why, when pathways of care are clearly mapped out, who is responsible for making sure patients don’t slip through the net?
Why is it, that the patient, or carer (as I am for my dad) has to follow these important services up.
Sometimes I find myself wondering, is it an age thing?
Will an 83 year old Parkinson’ patient benefit from this therapy?
I hope it’s not the issue, I would like my dad to access as much support as there is available to him, especially if it will help his condition, and give him a better quality of life.
I hope we have a better outcome in the next few weeks.